Showing posts with label Alzheimers. Show all posts
Showing posts with label Alzheimers. Show all posts

Tuesday, November 23, 2010

What Are You Waiting For?

Always Waiting
I was reading a writing prompt on http://www.gather.com/viewArticle.action?articleId=281474978604784 by Greg Schiller about family stories.  The writing prompt itself seems important to me. 

"Write anything you want, humorous or not, fanciful or factual on the theme of family stories."
  • Tell the stories that your family retells every time they get together.
  • Tell the stories that were never told.
  • Tell the stories that need to be told.
  • Tell the stories that will be lost if you do not tell them."
These prompts bring up so many memories. Some of them are to strong for me to even articulate them.  Some are to recent for me to share them.  Though in my heart I know that I need to share them, at least with myself.  I tried to keep a journal when I took care of mother.  I kept a surface one.  Every time I tried to write about the emotions and what was going on in my mind I couldn't put pen to paper.  
Part of it was facing the facts that I was losing one of the most important people in my life - my mother.  The disease was stole her independence, her ability to communicate it also stole her memories.  It also stole my security -  here was this woman who had been so strong and independent, and now wasn't. A part of me wondered if I was looking at my own future. 
What didn't change was her love for me. The fact she may not have known who exactly I was wasn't important.  She always knew she was loved by me.  
She once told me that we don't always get a choice between good and bad choices.  Sometimes it's between bad choices and worse choices.  Families often face difficult choices when trying to find care for their loved ones. Part of making them comfortable sometimes means re-connecting our loved ones with their past - helping them revisit their life stories.
I have decided to accept the challenge and write some of my family stories.  I hope you accept the challenge too. If you do I would enjoy hearing about it. 




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Tuesday, June 30, 2009

Preventing Wandering with Door Alarms

Sundowners combined with wandering can be a trying time for caregivers. My mother only experienced "Sundowners" for a short time. However one experience lasted over a week during which she did not sleep at all. I managed for about three days to stay awake. It was a grueling experience. I was fearful that she would go outside and I wouldn't hear her leave. I talked to Mom's social worker, Dee Dee, and she suggested door alarms.

The set we got was from RadioShack and was actually a home security system. The system had wireless alarms that were attached to the door and frame. It had a central receiver that was plugged in. You could program it to call the police if the alarm went off (I disabled this option). The door alarms could be set to "chime" or make a "raucous noise" that was loud enough to wake the neighbors.

Shortly after the alarms had been installed I was talking on the phone to Dan (my husband to be, at this time we were just dating). Just before he called me, a friend of mine and her grand-children stopped by to visit. While talking to Dan one of the kids went out the door, making it chime. I continued talking because Mom was sitting on the couch beside me. After the door chimed Dan said, "Why are you still on the phone?" I explained to him that Elsie and her kids were here and Mom was safe.

I was amazed when I realized how conditioned all of us were to listen for the chime. The door alarms saved my sanity and kept Mom safe.

I have seen updated door alarms in several places. The prices for most systems are very reasonable. (1) Wireless Door Alarm (2) Wireless Door Watch Alarm (3) Door Alarms

Wednesday, June 24, 2009

Wandering

Many people with Alzheimer’s or other memory challenged folks sometimes wander and cannot tell anyone who they are or where they live. When Mother would get away from one of the caregivers or me; we would start to search. Talk about panic and anxiety.


The other day a friend of mine told me of an incident where she found a lady who did not know her own name or who to contact. My friend called the police and eventually this lady and her family were reconnected. One of her observations was no one really knew how to respond to this situation (911; the police; the family nor community members at large. This got me to remembering my own experiences both as a searcher and as a community member in a similar situation.


As I was surfing I saw an ad for a GPS unit for people with Alzheimer’s. The initials GPS stands for global positioning system. It helps track an individual’s location if they have a GPS device with them.


My research showed that several other countries have GPS bracelets and other GPS jewelry that hasn’t yet been offered in the United States. I did find several companies that do offer some form of GPS monitoring devices for families. (1) Quest Guard (2) World Tracking Solutions (3) Wander Guard (4) RadioShack

Our Good Health has an interesting article about practical solutions for real problems that are faced by care givers and their families.


The Alzheimer’s Store and found two books that connects to the problems of wandering. The first is a workbook called “In Search of the Alzheimer Wanderer” by Mark Warner. It is a workbook for the families and community members to deal with the problems of wandering. The statistic that I read said many wanderers die if not found in the first 24 hours. The second book is the story of Stella Mallory Dickerman “Gone Without a Trace”, who unfortunately was not found in time. It is written by her daughter Marianne Caldwell.



The GPS units that I located were a little pricey but I noticed an article from a community service organization seeking information and prices because they wanted to purchase GPS device for several families.

Wednesday, June 17, 2009

Read Aloud Books for Memory Challenged Adults

A few years ago I read an article in Woman’s World Magazine about Lydia Burdick and the book she had just written for memory challenged adults. At the time I ordered her first book (Sunshine on My Face) my mother was not talking very much. As I read the book to her- she saw the pictures of the cows and responded: “Moo! Moo!” It was a magical moment!
According to the reviewer, Margaret Withey, from the Observer – Lydia not only wrote a book but created a new genre. I believe that is a true statement.
Other Read-Aloud Books for Memory Challenged Adults
Happy New Year to You by Lydia Burdick
Wishing on a Star by Lydia Burdick
Through the Seasons: An Activity Book for Memory Challenged Adults by Cynthia Green
A Loving Voice: A Caregiver's Book of Read-Aloud Stories for the Elderly - Edited by Carolyn Banks and Janis Rizzo


Sources & Reviews: www.healthpropress.com
New York City Alzheimer’s Association Chapter: www.alznyc.org
The Observer www.hartford.edu/NewsEvents/ObserverPast/ObserverFall05/books/sfbfa05b.html
Audio Archives – Lydia Burdick www.wsradio.com/copingwithcaregiving/january2005.htm
The Alzheimer's Store www.alzstore.com

Alzheimers: the on going journey

My mother, Elizabeth Chandler, was diagnosed with moderate-advanced alzheimers in October 1998. She passed away June 10, 2007. During most of that time she lived with me. I still miss her. In honor of her life I would like to share some snapshot experiences from our family's journey.
In looking back there are things I wish I had understood better, and successes that I wish we had celebrated more.

Last fall (2008) I attended the Montana Alzheimers Conference, one of the presenters was Jolene Brackey. I wish that I had met her years ago. She shared some very practical and down to earth strategies.

One observation that she made was to determine where in the past your loved one is living. If the chrological age of the person is 85 and they are worried or talking about their young children. In their mind they are probably about 25. Jolene's recommendation was to find and copy pictures from that time of their family. She also said to write out the names, including pet names, of the people. Write several short stories (events) about the people in the pictures. Make copies of the pictures and the stories so that anyone who visits your loved one can talk about that time and people. This helps them reconnect to their memories, and gives them real conversations.

"Families have the knowledge to build a bridge between the care provider and the person with Alzheimers. Once families understand dementia and how to apply the knowledge they hold. They can become "helpers" in the journey." - Jolene Brackey


Jolene has a CD set called "Family Moments"